Infrastructure and User Services
Dutch-speaking parents of children with autism, legal guardians of people with autism, adults with autism (>16 year) and adults without autism can participate in the NAR. The participants are followed over time, which means that they receive one questionnaire per year. For each questionnaire, the participant can decide whether they want to participate. Participation in the registry is voluntary and free. All data will be processed confidentially and is encrypted and stored in a secure system.
Examples/description of the type of research
The aim of the NAR is to follow the course of development of individuals with autism over time, primarily through online questionnaires. We collect information on a wide range of topics related to the living situation of people with autism in the Netherlands. This way we can identify the differences and similarities between people with autism. The data from the NAR are valuable for scientific research. The NAR also helps people with autism to protect their interests and improve their quality of life. Data include online questionnaires, online test data, DNA, online intervention effects, Smartphone interventions, EEG and MRI data.
How to access the infrastructure ?
Psystore, Qualtrics
