ADC

Amsterdam Dementia Cohort

The Amsterdam Dementia Cohort was established in 2010, along with the foundation of the Alzheimer Center Amsterdam. All patients that visit the Alzheimer Center are asked to consent to the use of their clinical data for scientific purposes. This patients population comprises the Amsterdam Dementia Cohort. Patients that are referred to the Alzheimer Center Amsterdam undergo an elaborate one-day screening battery. This battery consists of, among others, extensive neuropsychological evaluation, an MRI scan, an EEG, and a lumbar puncture. After their baseline visit, the majority of patients visit the clinic annually for follow-up.

Website ADC

Infrastructure and User Services

SQL database with clinical-and biobanking data. Several automated data flows from clinical source systems (e.g. Epic, GLIMS, OpenSpecimen) are in place. Local data access procedure is fully operational, which includes a data access form, data access committee, SOP for creating custom datasets, and practice guidelines for data exchange.

Examples/description of the type of research

Clinical research on Alzheimer's disease and related dementia's.

How to access the infrastructure

Custom datasets are provided on internal exchange drives (90%) or via a remote desktop environment (10%)

Disciplines

Medicine

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